Has anyone tried this? The pain is unbearable even after constant medicationhave you found any relief? Nerve was unnecessarily cut but I understand its not needed, idk. Please please share more about this part. Restoring the normal neural working of the nervous system. I could still smile, joke, feel happy talking to my husband usually and I never allowed myself to think about things as a paraplegic. Ayurvedic treatment combines products (mainly derived from plants, but may also include animal, metal, and mineral), diet, exercise, and lifestyle. Most of the patients who had problems with this particular region of the neck were accidental cases. Anyways, i dont know if my previous persistence having physical therapy helped me through this. I hope this helps. And you think poorly managed healthcare is merely a coincidence? It goes in the abdominal cavity and a tube is rummabove where your condition begins. From the office assistants to the spine surgeons, our staff is friendly and caring, ready to answer your questions and make sure you leave with a complete . In July 2008 I was told by an Orthopedic Spine Doctor from Shrewsbury, New Jersey (Broad Street) I had a Sequestered disk and needed cervical decompression surgery. I was stable for months before surgery but after my symptoms have gotten worse. i was originally diagnosed with FIBROMYALGIA. I need to depend on Jesus for healing! Just so they could get 5 STARS in all the BS reviews too many of us depend on that are all crap! Myelomalacia. Good luck and please share what youve learned In the case of any long extended cure, Ayurved treatment is the right selection as it can cure even very stubborn and perennial diseases. The injury causes bleeding of the spinal cord and that makes the tissue soft. I take my sleeping med at night, wake up, take a small portion, fall asleep to late noon, do it again till he comes home at 430, we have dinner every night door dashed because standing is painful when more than 5 to 10 minutes and severe adema, Im not asking him to cook dinner after 10 to 12 hrs worked, but then I go right back to sleep after dinner. I prefer a vegetable vs an entree. My sister-in-law believed that it was worth it. *Another MRI showed more nerves being damaged so he says I can fix this. So, you can prepare a paste by grinding guggul and directly apply it over the joints every day for quick relief. C3-C4 disc problem is commonly found in people who carry some weight like bags etc. But the implications of . I cant drive and always have to have my husband or grown son close by if Im up and about but I can walk from bedroom to kitchen with no assistance from time to time. Positive thoughts to all ? I have MS as well, and to be transparent, I thought I was having an exacerbation and didnt seek medical intervention until the day I awoke with the numbness. Im not a vegetarian per say. I had c5 c6 fusion in 2010, and have progressively worsensed each year. But if the bulge is central or disc herniates centrally it can give complicated symptoms on whole body. Dan. My story, my experience with spinal related pain, myelomacia and spinal epidural hematoma. The only muscle I have is my calf muscle. I had emergency ACDF after waking up and being numb from the top of ribcage down to my toes. I just came across this page and im trying to navigate it. I do eat crushed ice all day, morning to night=Equals MAYBE 1 1/2 cups a day of H20. It is FREE! I just got a MRI which shows myelomalacia at T8 on the right side and that is exactly where the surgeon had put the leads. Panchakarma treatment helps us in this. healing furniture *What if I told hubby his chest pain was just magnified to him and stop being dramatic while he had a heart attack, I didnt tell my mom when she had a copd exacerbation needing hospitalized, settle down and maybe you could breathe better, then stop thinking/ talking about it day in and day out. Dr. Sinicropi performs surgery in the following Minnesota cities: Edina, Burnsville, Roseville, Woodbury, Maplewood, Stillwater. I get no sleep other than the 1 to 2 hours after I take oxy. Now they dont like to give pain medicine which is so so sad for people who truly suffer! I would like to find a doctor that specializes in Myelomalacia Please does anyone know a doctor anywhere in the United States that specializes in treatment with drugs and to let me know what What I should do. Every time I told my doctor about these symptoms, she told me it was because of my diabetes. So alittle relief is huge. I awoke each morning at 530am to be hand washed, dressed, hair and makeup done bf pt therapy arrived at 8am, occupational therapy at 630-7am. "Myelo" means spinal cord and malacia is a "wasting away". They've been tried and tested through the ages in India, not only for relaxation, but for health benefits such as improving circulation, toning the muscles, calming the nerves, lubricating the joints, and increasing mental alertness. Medical Marijuana as an Alternative Treatment for Myelomalacia For thousands of years, humans have used the marijuana plant to: Control nausea: Cannabis has antiemetic properties that help ease an upset stomach. I also was doing aquatic physical therapy 2x a week, 2 monthly land sessions, for 3 months then covid hit, it is 1 on 1 and he was preparing me to be able to try the gyms aqua aerobics class, but aqua therapy, just you and your therapist, is just amazing and its low impact, weight controlling, positive body shaping. [2], In advanced stages, this disorder causes flaccid paraplegia (impairment of motor function in lower extremities), total areflexia (below normal or absence of reflexes) of the pelvic limbs and anus, loss of deep pain perception caudal (toward the coccyx, or tail) to the site of spinal cord injury, muscular atrophy (wasting away of muscle tissue), depressed mental state, and respiratory difficulty due to intercostal (muscles that run between the ribs) and diaphragmatic paralysis. They (Medtronics) have billions of lawsuits against them.. Here in Australia we are told to go home and die no pain meds just told to go I never knew I live in a 3 or 4th world country they say Myelomlacia cannot be treated lucky me to live in a country that cares, Yes mate I talking to you and anyone least that live in this nightmare to you all am sorry as I lived with this now for over 7years 8 in February that 8 years of hell makes me think what did I do to get this. Heck yeah, but know theres not much I can do, except pray and be tender with myself until I know more when I see my docs soon. Wow. Helps pain nausea spasms and allows more restful sleep than Ive had in years. As for me about 7years now thank god this is the last year of hell, I guess people dont use this forum much. He only does Cervical. Never had neck pain just hand pain. So I say why even talk about it, talk about what we used to, give me the gossip, but nope, nothing! Panchakarma Treatment to avoid spinal surgery for herniated disc. Hr is the one that told me how bad my injury had been. Treatments tried, follow up from others. *Itd been decades since feeling pain free and then I went to get off the bed and found I had paralysis in my mid section only and it was so hard to walk from no hip and upper thigh muscle control. [1] Possible causes of myelomalacia include cervical myelopathy, hemorrhagic infarction, or acute injury, such as that caused by intervertebral disc extrusion. So they did half the job already. The biggest disservice my doctors did for and 2 me was to not face truth any better than I & try to fix unfixable. I was blown away when I saw that. Pain yes, but good mobility and pretty strong considering. So that has led to the long list of testing, I am not interested in having$$$$$$. My arms feel like they are on fire, frost bitten and run over by trains all at the same time. Driving is my next challenge and am giving myself till summer. God bless. Stated I needed surgery. The spinal cord bulk is made up of nerve pathways. (Ayurveda) doctor. So, if you are suffering with some problem in C3-C4 region and looking forAyurvedic treatment for c3-c4 disc problem without surgery than please share your MRI with us. Once breached, the ramification of the damage directly affects the motor functions of the body. But it can happen in patients who work in a position where they need to look upwards regularly. 10 months ago. If you notice any of these symptoms, see a medical professional right away to get a full diagnosis. In advance stage myelomalacia, treatment takes the form of palliation(supportive care, meant to tackle emergent symptoms rather than treat the cause). and not criss cross. So I was trying to improve my pain and instead got a million times worse from a surgical procedure. I have been told I have a compressed spinal cord in my neck and a reverse curve. Hopefully someone will respond to this post and tell me the truth. Is Your Life Worth $10 Million? I tried an inversion table at a store that sold used ones and after only 1 minute I felt a lot of relief. The next day I walked 25 ft then each session had significant progress, next session 81 ft, then on the weekend I raised myself 100% on my own, out of my wheelchair while in parallel bars for safety, I Could not feel if the assistant behind me raised me so they filmed it for me. When the spine softens, the nerves are put at an increased risk. Its been great to find people who understand. The main symptoms patient complaint about are-. Your email address will not be published. It can increase endurance and strength, Id gotten to where I could, with control, lower myself and sit in the cars seat without having to fall into the cars seat as it was not something I could do since Feb, 2019s spinal fusion. When he hung out, itd be 7am,12am, 5pm, he didnt have any other priorities other than to try and figure out what happened and apologized often that this had never happened to him before. Surgery attempts to clear the blocked blood flow to the spine. *Im very in tuned to my body and when theres something new, feeling different, becoming a new pattern, etc, I call the Dr, Im also emailing along with it and I send photos if necessary. I feel that this has to have some effect. Hey guys! Most of the damage was caused unintentionally. I reminded them Im the youngest by 30 yrs on this floor and understand their concerns but Im not elderly, I iced my muscles every evening and kept feet elevated with those hose worn they give to reduce swelling. My husband had MRI next day called from NEURO-SPINE DR. for surgery scheduling. The cervical myelomalacia or myelopathy occurs commonly in region of C3-C4 and C4-C5 spinal disc region. Although research into the causes of myelomalacia is still developing, sports-related injuries and old-age as factors are generally seen as the major causes. Just make sure they get that co payment but no URGENCY and they seem bored with me! Dr. said he has a ling road but very optimistic. A simple fall may damage the spinal cord and myelomalacia may soon ensue. and try to find alternative remedies for me. Ayurvedic treatments is an ancient practice that is considered as the best natural form of healing that originated some 5,000 years ago in the Indian sub-continent. This disc gives passage to the- C4 nerve root. All the odds I bet on getting well are now-lets see what tomorrow brings. Myelography involves injecting a radiocontrast substance such as iodine, barium, carbon dioxide or water and conducting a series of X-Rays. Ayurvedic spa treatments are the crme de la crme of the massage world. After all of those I was just told a month ago that Zi now have a hole in my spine at level C6 due to all of the surgeries and sever spinal stenosis. I am numb from my neck down the pain in my neck combined with the numbness is more than I can take each day. Its hard when our families dont understand our suffering. The only thing holding me up right is a collection of metal corroding along with my spine the worst part is my cervical thoracic kyphosis has my bowling bowl head pulling me over against all odds. The latest research shows that stem cells could be deployed to undo some of the nerve damage produced by the condition. This is an abnormal softening of the spinal cord. Therefore, we work according to a proper plan. I would post both their names but eventually I will not be able to work and I cant afford to be sued by these greedy scum bags and their greedy lawyer buddies! On this site, Dr. Sinicropi periodically provides assessments and commentary on specific procedures that individuals have undergone. Veronica I felt compelled to respond to your message because I can totally relate to what you are experiencing. This is why doctors insist on athletes wearing protective gear during matches. i have a depressing feeling i am screwed with this cervical issue. Right before my surgury my finger tips were getting numb it progressed to where hands and sometimes ate ate numb. 2022 Dr. Stefano Sinicropi The information contained on this site is intended to provide only general education about spine surgery and conditions. As she gets infuse ketamine treatments twice a month and only takes gabapentin. Cervical myelopathy is a condition involving compression of the spinal cord at the cervical level of the spinal column resulting in spasticity, hyperreflexia, pathologic reflexes, digit/hand clumsiness, and/or gait disturbance. Then in April 2021 #77. "Myelomalacia" or "hematomyelia" is an acute, progressive, and ischemic (due to impaired blood supply) necrosis of the spinal cord after injuring the spinal cord. Rationale behind application of Virechana and Basti in the EHT. There is no known treatment to reverse nerve damage due to myelomalacia. I had a tripple neck fusion but, damage was too much to fix. Dr. Corenman. The only thing that helped me was having an intrathecal pump installed. Wait, let me look up that definition of myelomalacia again. The damaged areas can be full of scar tissue and adhesions that block the transport of the bodys natural healing mechanisms. I was exhausted to finish this and stopped spell check. Ayurvedic treatment for c3-c4 disc problem needs a proper care. As the bones in the body begin to weaken in a process known as osteopenia, the body is more vulnerable to damage. I have put it off for about 5 years using a chiropractor with some results.I feel that this brace may be heating up because of the microwave radiation. Pain of C3-C4 disc problem is around the base of the neck. The three witnesses never took me to hospital. In my 25+ years of clinical experience as a registered veterinary technician, I've found that Myelomalacia, although rare, is a devastating disease when it strikes your pet. 1 in a million have hematoma in the spines epidural, very rare, but so is myelomacia. Im a chronic pain patient with numerous incurable diseases including Myelomalacia, CRPS/ RSD Fibromyalgia and more. Brutal. To diagnose the condition, your doctor will likely perform a physical exam and order an MRI or myelography to confirm a suspected myelomalacia diagnosis. I wanted to keep that feeling but realized my independence would be lost. I was just diagnosed with c-4-5 myelomacia. *So making it 4 fusions in all that 7/2020 surgery, with laminectomy in the thoracic, to protect the cord from the spreading of myelomacia (more spinal cord injury). Death from respiratory failure will cause my death in a short while. I have another one up, Id also been faking my walk for 5 yrs with the left foot being basically of no use to me. Relaxation of the muscles. On top of that the scaffolding that is use like (Infuse) is a walking time bomb. Most doctors agree that the only guaranteed way to treat the condition is by preventing it in the first place. Myelomalacia is often called an ascending syndrome since it can reach other upper-body regions. Myelomalacia: Refers to increased T2 signal in the cord, BUT the cord is atrophic and gliotic as a result of a chronic injury of any form and is irreversible and the patient's symptoms will not improve. Even with the most appropriate and aggressive medical and surgical treatments, 10-15% of dogs will still go on to develop myelomalacia within a week after the initial spinal cord trauma. 1-3 The condition was first described histopathologically in 1972 1 and is characterized by severe thrombosis and hemorrhage within the spinal cord, 1, 4 but its . I had my C5,C6,L4,L5,S1and S2 replaced the doctors say there not a thing they can do for me now and as I live in Australia I cannot get medication of any sort that takes the pain away am glard it my last year here I almost died 3 times now there is no treatment for Myelomolinca but remember I was down to 1.5mm before my operation plus I was blowing up In the Amry so I was a mess to begin with and that was 30years ago so I have had a long run so listen to the doctors a do what they say so you dont end up like me, A lot of people seem to getting this neck surgery as of late, I feel it has something to do with the microwave transmissions that have building over the years. I am on Lyrica 75mg twice a day. I already know he is going to tell me nothing he can do. I been having symptoms of muscle pulling in the arms, legs and up to my face. You should go & see a Neurosurgeon at a University Hospital, i.e., Robert Wood Johnson, New Brunswick, Jersey Shore University/Trauma Hospital, Neptune, NJ, University Hospital/Trauma Hospital, Newark, NJ. Ill enjoy myself rather than exist miserably if presented with the decision. Im not afraid. Since many possible conditions can cause neck and upper back pain, cervical myelomalacia affecting the stability of the spine is usually diagnosed with image tests. The first thing he said was that he saw a small white dot on my mri and said Myelomacica. Hovering above their heads. I am going to try a Spinal Cord Injury Doctor at Hopkins. This condition of insufficient blood supply may be caused by an obstruction of the spinal cord vessels (thrombosis, embolism) or spinal cord compression. I have had other laser treatments with different lasers and none have ever been noticeable except for this one. PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. I started with Morphine but am now on Dilaudid I thing my does age is 6 mg daily, there is a 300 to 1 ration on this method of pain management. Myelomalacia and Medical Cannabis Treatment. Symptoms of myelomalacia spine softening are typically quite subtle. This spinal cord bleeding condition can come about for many possible reasons, but is always a devastating diagnosis which may lead to serious and often permanent disability or even death. If left untreated, then that continues to spread and cause further damage to the cord. They welcome the challenge? [citation needed], Due to extensive physical contact and activity, many athletes become victim to myelomalacia. Any thoughts on that guys? I wish I was a fly on the wall that day!I am sure there are other patients who they injured during surgery and covered it up with erroneous Post Op reports and said the patient refused to wear the surgical collar! Another consequence of myelomalacia is improper circulation of blood to the area damaged, resulting in further damage to the spinal cord. Now I went from a cane to a walker and leaning toward surgery. My pain started in 1999 And they found the myloMalaysia in 2014 had c5- c7 surgery Dr said I was gonna be paralyzed if I didnt have the surgery, I went to the hospital for my left side of my mouth drooping and slurred speech, memory loss When they found it. I forgive them. I am hopeful that there is some treatment. There was quarter sized loose bone fractured in that left foot and they cut a nerve hoping itd work and correct the numbness, but was advised to wait till after 2/2019 TLIF, because the nerve may not need snipped if the feeling returned. I would like other articles on this subject of Myelomalacia, I have this and need more info please. Injections may be helpful in reducing swelling of the spine. Any info would be so much appreciated. I am interested also. Nerve damage from bulging discs and other conditions become more probable. MY MOM WAS THINKING A REST HOME CLOSER TO HOME WOULD MAYBE BE BEST FOR ME. She needs to get out of the marriage. So they dont know how to treat it and think youre just trying to get drugs. I had never met this guy other than that day he said this to me. The conditions highly treatable via surgery and medication if its caught in the early stages. My family cannot accept the fact that this condition is so bad. Dr. P who I thought was my surgeon even wrote in his post op report I refused to wear my surgical collar after surgery. Does this mean I might have myelomalacia? My symptoms come back but overall I think I am making small improvements, albeit slowly. All of my symptoms were initially confined in my left hand but upon waking from surgery my right shoulder was burning in severe pain and had no feeling. It was removed the next week but the damage was done. If youve reasons to suspect that you could have the condition, we recommend that you consult a neurologist for an immediate assessment. I never had the surgery after listening to others tell me that Youre never done having surgeries and listening to one man almost cry over the pain he was still in after having had 9 spinal surgeries and how he was on a daily regimen of addictive pain killers. Many times, this condition is misdiagnosed with rotator cuff injury too. Means between the third and fourth vertebrae of the cervical region. I will be seeing a Neurosurgeon at Western Hospital in Toronto, Canada to have his opinion of my condition and, I send my images and report of the MRI of April 6, 2021 to Neurosurgeon Specialist at a prestige Clinic in Rome, Italy.. Ashwagandha. Vaidya Ji is well known for his specialisation in Ayurvedic treatment of different ailments. Ayurvedic treatment for c3-c4 disc problem, not only relieves the problem. However, the treatment hasnt left the experimental stage. Myelomalacia is permanent damage to the spinal cord - my diagnosis has recently been upgraded to severe focal C5 myelomalacia I now rely on a NIV, Nebuliser and Cough assist machines because of respiratory weakness causing pneumonias (Klebsiella-deadly)- lung infections (E-coli) shortness of breath - severe spasticity - the list of symptoms is endless. As far as treatments are concerned, theres no universal cure for myelomalacia. Myelomalacia is the softening of the spinal cord, resulting from injury and insufficient blood supply to the spinal cord. Have decompression surgury to get the pressure off spinal cord or it will worsen, Hello All, My name is Dan. Which I have to go through a driving course with physical therapy at a larger hospital bf driving is allowed, never realized but makes since. I plan on buying a table and doing that as well for about 1 or 2 minutes at a time, a few times a day. over a year ago. I do too. Furthermore, because i have degenerative disks on L4, L5, I was told by my specialists, the muscle pain in the arms and legs was because of the disk problem and narrowing of the spinal cord. *Within a week, I was wheel chair bound. I think that if we turn off all the cell towers, drop the weather radar and satellites, this nightmare would end for many people. They had to ask me to stop and let my muscles relax and recover from my days sessions. Am I still pissed off? Did anyone experience these symptoms prior to being diagnosed with Myelomalacia? how serious is it and can it be cured????? which in itself is scary. Your email address will not be published. i have even gone out on the internet for meds to augment the sparce amount of ultram i have been given, finally. then a third surgery on my lower back so i can walk better and lost that hideous pain, but my arms are crap.i have a full garage of ryobi yard tools i bought for myself several years ago. i havent worked since 2008 and had to live on my 401 and savings until i started collecting ssdi. Hemorrhagic infarction (bleeding) of the spinal cord can occur as a sequela to acute injury, such as that caused by intervertebral disc extrusion (being forced or pressed out). The spontaneous course of myelopathy is characterised either by long periods of stable . My legs used to be huge but now look deformed other than a well defined calf. I have questions and need answers and I have none. Now what. But need to know results. There is no answer to your question or condition. Although clinical signs of myelomalacia are observed within the onset (start) of paraplegia, sometimes they may become evident only in the post-operative period, or even days after the onset of paraplegia. Fixation of the cervical vertebrae and disectomy seems only two options in modern western sciences for the treatment for c3-c4 disc problem. It is more likely to develop in dogs that have complete paralysis and sudden loss of deep pain sensation ( Grade 5 ). *Hed been told 12.5 months previously, radiologist & pain mgmnt Drs (2 total) advised from an MRI there was a large mass, spinal cord was flattened from t10 to lumbar and swollen above, not common to see. DO NOT LET AN ORTHOPEDIC DOCTOR TOUCH YOUR NECK! This is usually caused by an acute injury. She knew exactly and that my MRI shows the myelomalacia. According to the MedicoLexicon, it is simply the softening of the spinal cord . Can Lumbar Radiculopathy Be Treated Without Surgery? Respiratory distress uneasiness in breathing. It revealed Myelomalacia and acute cord atrophy. I knew then, heck yeah,I got this, that Monday I could do 100ftx2, by end of week, walked back to my room (all walker assisted and someone holding my support belt) and my walk was not pretty, but I was doing it, my feet scissored and Id step on my own feet and wouldnt even know it. They were in Minnesota for 5 days. I am under the care of pain mgmt but there has got to be a better way than living in horrible pain the rest of my life. I not experiencing any increased pain at all. Sometimes pain can reach up to the chest too. Of course, your leg/hip (though not chest) symptoms could also easily be caused by lumbar spinal problems. I know someone who has your condition and he is really trying to connect with someone who diesnt look at him with ???? or degeneration of the spine over time. I didnt know what myelomacia was until yesterday when I googled it. As motor function degenerates, muscle spasticity and atrophy may occur. These are common conditions, but. There is very little info on the internet regarding this rare condition. I always wake up hoping to feel better and I feel worse. My arms look like someone who has had weight loss surgery and have excess skin hanging where once was a well defined tricep. Apparently, a few areas keep rocking into the cord with movement. I know sounds crazy but it is not pleasant at all to stand or walk. Recently told about dr. Results may vary from person to person. it became plain to me that the pain management group treating me and others were only interested in nerve block treatments for our pain, numbness, lack of balance, etc. Well in September 2008 I had the surgery. Panchakarma is all about an Ayurvedic system of therapies. myelomalacia is thought to occur at sites of cord oedema. What most of these treatments have in common is they increase the flow of blood and other bodily substances into the damaged areas to encourage healing. 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